LSP_Kevin Posted February 4, 2020 Share Posted February 4, 2020 Awesome news! Kev nichenson and mpk 2 Link to comment Share on other sites More sharing options...
Phartycr0c Posted February 4, 2020 Share Posted February 4, 2020 This is fantastic news and here is hoping the improvement is continued to the fullest recovery. I'm so pleased for your daughter and you all. Medical science is amazing. Stay strong. nichenson and mpk 2 Link to comment Share on other sites More sharing options...
MikeMaben Posted February 5, 2020 Share Posted February 5, 2020 Good news, welcome back mpk and nichenson 2 Link to comment Share on other sites More sharing options...
LSP_Mike Posted February 6, 2020 Share Posted February 6, 2020 Great news! mpk and nichenson 2 Link to comment Share on other sites More sharing options...
mpk Posted February 6, 2020 Share Posted February 6, 2020 Very happy to hear good news. nichenson 1 Link to comment Share on other sites More sharing options...
AlanG Posted February 7, 2020 Share Posted February 7, 2020 Excellent news! Well chuffed for you and your family. Hope the future is bright and fun filled for your daughter nichenson 1 Link to comment Share on other sites More sharing options...
nichenson Posted February 7, 2020 Author Share Posted February 7, 2020 Thank you everyone. We go back to Memphis tomorrow to start the induction on Monday. We are all hoping that at the end of May/beginning of June when she gets her scans at the end of this group, that all will be clear. Pretty much since this has begun I have stayed right by her side other than doing a few small things for my health, errands, and housework. My wife works full time and luckily makes enough for everything to be covered. I will be happy though when we aren't in a hospital so much. I think a lot of hospitals have no clue how much of a toll it takes on parents with sick kids. My daughter just seems to go with the flow and play. It really doesn't matter where she is. Everyone loves her and she gets visits from all the nurses. Through all this she has had maybe four or five really bad days. Most times when she throws up, she just laughs at the mess she makes and then wants to eat more. Anyway, St Jude's has been the best go. Stays there are not that hard on us compared to the children's hospital in Charlotte. This hobby has always been my stress relief. Hadn't been able to get much going prior to a couple of weeks ago. I started working on a Takom Chieftain as I love that Berlin camo. Felt so good. Next up is a WnW kit. Not sure which though. BiggTim and MikeMaben 2 Link to comment Share on other sites More sharing options...
ChuckD Posted February 8, 2020 Share Posted February 8, 2020 I don't know you, but know that from the bottom of my heart, I wish your family the best. Link to comment Share on other sites More sharing options...
nichenson Posted October 10, 2020 Author Share Posted October 10, 2020 I have had a few inquiries about how things were going. I actually do have some news to report. As some of you may have noticed, I have been active again. I actually have had some bench time. Not much, but more than I have had in a year and a half. The reason being is that our daughter finished her chemo. The last two cycles were not bad at all and somewhat typical of what others experience. Those drugs were a lot less intense on her body. The eight cycles before were hell for all of us. Over the course of a year we spent about 116 days of it in the hospital. She would have had a lot more had we not been in Memphis at St Jude for cycles seven and eight. They will actually allow you to stay in housing instead of inpatient if you are stable enough. It's just across the parking lot. Anyway, she had an MRI on September 24th. There was only one spot showing and it did not take up any contrast. That pretty much translates to either scar or dying tissue. She was given a release from active treatment. Now we have many months of therapy to help her as we have fallen behind on several things kids her age should be doing right now. I am lucky enough to were we can afford for me to stay at home with her so it looks like she gets a stay at home dad and maybe now we can get back to life. She does go back in January for an MRI and every so often to make sure it hasn't returned. Every day is a little miracle. It amazes me what they can do and treat even with decades old medicines. Tnarg, Daniel460, Brett M and 14 others 17 Link to comment Share on other sites More sharing options...
Dpgsbody55 Posted October 10, 2020 Share Posted October 10, 2020 Excellent news. I guess you feel like you can breath again. Fingers crossed all goes well for the next MRI. Good luck, Michael nichenson 1 Link to comment Share on other sites More sharing options...
LSP_Matt Posted October 10, 2020 Share Posted October 10, 2020 Thank God. So relieved to hear your daughter is recovering. It's horrible for your daughter but a nightmare for parents. Life sure can suck sometimes. Thinking of you and your family and that the healing consolidates and normalcy can resume. Matty nichenson, Lothar and Kagemusha 3 Link to comment Share on other sites More sharing options...
MikeMaben Posted October 10, 2020 Share Posted October 10, 2020 nichenson 1 Link to comment Share on other sites More sharing options...
Kagemusha Posted October 10, 2020 Share Posted October 10, 2020 I somehow missed the last two updates, delighted your little lady is pretty much out of the woods, I've no doubt she'll soon catch up with what she has missed, wishing her a healthy and happy future. nichenson 1 Link to comment Share on other sites More sharing options...
nichenson Posted October 10, 2020 Author Share Posted October 10, 2020 Thank you all. It's been rough, but she did it. She's as happy as can be right now. I couldn't have asked for anything better outside it never happening. phasephantomphixer, Daniel460, MikeMaben and 7 others 10 Link to comment Share on other sites More sharing options...
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